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Scientific program

Satelitarne Konferencje EUROlinkCAT 7.04.2022
09:00-14:00
Wielodyscyplinarne wsparcie rozwoju osób z zespołem Downa. Wyzwania rodziców, terapeutów, dzieci: emocje, zdrowie, edukacja
www.trisomia21.ump.edu.pl   Rejestracja
10:00-14:30
Konferencja Fundacji SPINA - ABC interwencji kryzysowej wobec pacjentki z rozpoznaną wrodzoną wadą płodu, w kompetencjach personelu medycznego
www.facebook.com/FundacjaSpina Program w formacie PDF Rejestracja
EUROlinkCAT European Conference “Health and education outcomes of children across Europe with congenital anomalies” April 7-8, 2022
Scientific program:
Scientific program - PDF ikona PDF

Thursday 7 April 2022

All listed times are Central European Summer Time (CEST)

12:00-14:00
Student poster presentations
14:15-15:45
OPENING SESSION
Chair: Prof Anna Latos-Bielenska, Prof Joan Morris
Conference Welcome
Speaker: Prof Anna Latos-Bielenska
EUROlinkCAT: Why create a linked European cohort of children with congenital anomalies?
Speaker: Prof Joan Morris
EUROCAT: Maximising EUROCAT’s potential
Speaker: David Tucker
Multi-stakeholder engagement to support person-centred health outcomes
Speaker: Dr Sylvia Roozen
15:45-16:00
Break
16:00-17:50
Session 1 - The Voice of Parents and Science: Heath care and education of children with congenital anomalies
Chair: Prof Ingeborg Barisic, Co-Chair: Dr Amanda Neville
The voice of the parents
Speaker: Dr Kristina Garne Holm
The information and support needs of parents of children with congenital anomalies: an online survey in 10 European countries
Speaker: Dr Elena Marcus
Some insights into educational achievements in children born with a congenital anomaly
Speaker: Prof Judith Rankin
Panellists’ presentations
Speakers: Dorica Dan, Dominika Madaj-Solberg, Prof Jolanta Wierzba
Panel discussion
17:50-18:00
Break
18:00-20:00
Virtual discussion rooms (for anyone to discuss posters, parents´ experiences, foundations and associations)

Friday 8 April 2022

08:15-08:35
Winning student poster presentations
08:35-09:00
How do to create a linked European cohort of children with congenital anomalies?
Speaker: Prof Joan Morris
09:00-10:45
Session 2 - Medications for chronic diseases in children with and without congenital anomalies
Chair: Dr Maria Loane, Co-Chair: Dr Mads Damkjær
Type 1 diabetes mellitus in children up to ten years of age
Speaker: Dr Joanne Given
Anti-asthmatic prescriptions in children with and without congenital anomalies
Speaker: Natalie Divin
Prescription of cardiovascular medication to children with congenital heart defects
Speaker: Dr Mads Damkjær
Panellists´ presentations
Speaker: Dr Tania Schink, Prof Anne-Marie Nybo Andersen, Dr Christine Damase-Michel
Panel discussion
10:45-11:15
Break
11:15-13:05
Session 3 - Hospitalisations and surgeries in children with and without congenital anomalies
Chair: Dr Ester Garne, Co-Chair: Dr Mads Damkjær
Length of children´s hospital stays
Speaker: Dr Stine Kjaer Urhoj
Timing, numbers and mortality of surgical interventions in children with congenital anomalies
Speaker: Dr Mads Damkjær
Intensive care and mechanical ventilation in children
Speaker: Dr Cecilia Martellucci
Are permanent feeding tubes used by children with congenital anomalies?
Speaker: Dr Ester Garne
Panellists´ presentations
Speakers: Dr Luca Autelitano, Prof Damien Bonnet, Prof Irene Petersen
Panel discussion
13:05-14:05
Lunch break
14:05-15:55
Session 4 - Survival of children born with congenital anomalies
Chair: Prof Judith Rankin, Co-Chair: Dr Anna Pierini
Temporal and geographical variations in survival of children born with congenital anomalies in Europe
Speaker: Dr Michele Santoro
Ten-year survival of children born with major congenital anomalies
Speaker: Dr Svetlana Glinianaia
Survival of children with rare structural congenital anomalies
Speaker: Dr Alessio Coi
Difficulties in combining data on the survival of children with congenital anomalies
Speaker: Matt Pryce
Panellists´ presentations
Speaker: Prof Ruth Gilbert, Prof Paul Romitti, Dr Jennita Reefhuis
Panel discussion
15:55-16:25
Break
16:25-18:25
Session 5 - Evaluating and Enhancing the use of Hospital Discharge Data in the Surveillance of Congenital Anomalies
Chair: Dr Hermien de Walle, Co-Chair: Prof Joan Morris
Accuracy of congenital anomaly coding on live birth children recorded in health care databases
Speaker: Dr Marian Bakker
Using EUROlinkCAT data to evaluate cause of death from vital statistics
Speaker: Dr Anke Rissmann
Algorithms for use in health care databases to improve the surveillance of congenital anomalies
Speaker: Dr Cecilia Martellucci
Lessons learned from the EUROlinkCAT study on the quality of data in health care databases
Speaker: Dr Ester Garne
Panellists´ presentations
Prof Domenica Taruscio, Prof Sonia Hernández-Díaz, Prof Helen Dolk, Prof Robert Smigiel
Panel discussion
18:25-18:45
CONFERENCE CLOSING SESSION
EU This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No. 733001
The views presented here are those of the authors only, and the European Commission is not responsible for any use that may be made of the information presented here.
Projekt EUROlinkCAT otrzymał finansowanie z Unii Europejskiej "Horyzont 2020", Program badań i innowacji, umowa nr 733001.
Przedstawione tutaj poglądy są wyłącznie poglądami autorów, a Komisja Europejska nie ponosi odpowiedzialności za jakiekolwiek wykorzystanie przedstawionych tutaj informacji.
updated: 2022-04-06